Surgery Day

IMG_1039-1We literally rolled in on our last wheel, but we are now in Florida getting Little Man all fixed up.  We can’t sing the praises of Shriners Hospital in Tampa loud or long enough.  They really are bending over backwards to help us care for our guy.

On pre-op day they discovered that even more was going on than we had anticipated.  Rather than one bone spur needing to be removed he would need further amputation and reconstruction of his limb to remove old scar tissue.  This is much more invasive than we had planned for, but since we were in good hands we felt confident with the direction things were going.  Unfortunately, this means a longer recovery time, but we will take that one day at a time.

Yesterday was surgery.  He wasn’t feeling very brave, but when they rolled a wii into his room as they prepped him for surgery everything else seemed less important.  Mario Kart saves the day.  Unbelievable that he could be woozy from pain meds and able to win a race.

Surgery went as planned with no surprises.

We spent the night in the hospital (and may be here another one) due to his history of infection.  They are giving him iv antibiotics and pain medication.  He is having a very hard time with pain because some of the meds that usually work just aren’t working in his body.  Truly, this is one of the hardest things I have done as a mom.  Hate seeing my baby in this much pain.  He wanted to know if my leg was hurting because I was crying along with him.  Sweet boy.  No mom’s leg isn’t hurting…just my heart.

Would appreciate you praying for him that the pain would ease, that he would stay infection free, and that he heals beautifully.  I am ready to be eating this boy’s dust again!

The Leg – Surgery it is

Surgery has been scheduled for July 9th.  Although it is a bummer that Little Man needs surgery, we really are seeing God’s provision in how all the details are falling in to place.  His team of doctors in the States were able to review all of the information we sent them from here and they have concluded that there is a 90% chance that surgery will be needed.  So we are getting ready.

The surgeon “happened” to have a slot for the surgery the morning after our already scheduled appointment so they switched it to a pre-op appointment and surgery will happen the next morning.   Provision for sure!

The procedure is routine in the States – a bone reconstruction in his limb or in the words of our family “the doctors are going to fix the booboo in Little Man’s stub so that he can wear his prosthetic again!”  That is what matters.  It is killing our little guy not to be able to wear his leg.  He likes to be on the move!  I am afraid the frustration of immobility will be a theme for the next month if not more, but in the end he should be more comfortable than ever.

Our summer plans really are on hold while we seek the best care for Little Man.  We had hoped to do a lot of visiting and speaking – now we might be making a lot of phone calls.  We hope that you all will understand our lack of visits this time around as we focus on getting our little guy up and running again.

We for sure will be keeping you posted on how he is doing and how the process goes. I would love to hear any suggestions on how to entertain an active four year old while in the hospital!

 

Against the Norm – Leg Update

We live in a city where you often see adults with limb differences lying on street corners.  They might be playing an instrument, singing, or painting characters with a paintbrush between their teeth.  What they all have in common is a metal bowl sitting next to them to collect small bills.  They beg for a living.  People stand around and stare.

IMG_0961Our family gets stared at a fair amount, but it has intensified the past few weeks.  People just don’t know what to do with us…we don’t all look the same and we go against the cultural norm.  (Where we live, staring is not considered impolite.  When you don’t know what to do with something, you just stare at it.)  Usually, I take the stares in a stride.  It is part of living here.  I hate to admit that the past few weeks have been harder for me.  The momma bear in me raises her ugly head when it is my son’s leg that is being stared at.

We were out for an evening walk in our loaner stroller  (High five to a great expat community who is coming to our aid and helping us with our needs!) when we came past two grannies sitting on a bench.  They live in our apartment complex and I have seen them a few times.  I knew right away that they wanted to talk about Little Man’s leg.  I started to bristle until my sweet four year old reached his hand over to the woman.  They held hands as we talked.

“What happened to his leg?” she asked, and I answered with our standard reply, “He was born this way.”

“Oh, you are such a good person.”  Again, I have a standard response for this common statement.  “No.  He is a good person and I am happy to have him in our family.”

“He is your son?”

“Yes, we have four children.”

This is where the conversation took a twist.  Usually the conversation turns to how crazy I am to have so many children and how tired I must be!  HA!  I have a standard reply for that conversation too!  Instead, my son, interrupted.

“Want to see my booboo?  I can walk, but I am hurt right now.”  I guess the English word booboo translates into Chinese because she understood! 🙂 He pulled up his pant leg and stuck out his residual limb to this unsuspecting granny.  I felt myself cringe and I prepared my heart for the look of horror that would most likely come across her face.  I had seen it so many times as folks stood around staring at us, staring at his missing leg.

That granny….she leaned down looked at his leg and while holding his hand said, “I am sorry you are hurt.”

Tears sprang to my eyes at the sweet, gentle nature of this old woman.  To add to the healing power her words had on my soul, she looked up at me and said, “This boy will bring so much music to your home.”

I laughed as she told my son to be thankful he had a home to play music in and he would never play music on the street. Only a Chinese granny can be sweet and then fuss at you in the same sentence!

We live in a city where limb difference is equated with life on a street corner.  To the man who helped me carry the large stroller off the bus, to the mom at the bus stop who told her son not to stare, to the granny who held my son’s hand…thank you.  Thank you for going against the cultural norm.

 


 

Update: Little Man is doing much better.

The sore on his leg is finally starting to heal and this momma is breathing easier after two phone calls to our team of doctors in the States.  I can’t say enough about Shriner’s Hospital in Tampa.  They are just amazing!  We still are unsure what the next month will hold, but we are confident that Little Man will have the best of care.  This coming week the surgeon is reviewing x-rays that we sent to him from here.  High five to technology!

The antibiotics are done, the pain has subsided, now the hardest part for our little guy…not being able to wear his prosthetic!  It is hard for such an active guy to be slowed down.  Thank you to everyone who is pr.ying for him!

Not an Issue

IMG_0893Having a child with a limb difference is a total non-issue, except when there is an issue.  I mean, I often forget that Little Man only has one leg.  In the morning he puts on an extra sock, a limb sleeve and a plastic leg.  I don’t think about it again until bed time when we take it all off.  We would never call him disabled and most of our neighbors, until recently, had no idea that he was any different than the other children who play around campus.

 

… and then a sore appears.

 

The last few weeks we have struggled with what seem to be minor sores on Little Man’s residual limb.  Even a tiny sore can keep him from being able to wear his prosthetic and an infection in a sore becomes a concern.  This really is the first time we have dealt with any of this, which doesn’t help.  We are new at this, trying to figure out the best way to care for our boy with our doctors living on the other side of the globe.

We are thankful for the American doctors who live in our city who have helped us keep the infection at bay.  We are also very thankful that we had planned a trip to the States to see his medical team.

We are not sure what those doctor appointments will lead to.  Right now the sore is not getting worse, but not healing which might be the result of many different things – his need for surgery or that his prosthetic hasn’t been fitting well.

So our summer plans are shaping up a bit differently than we had planned, but it is a small road bump.  We know it will all go back to a non-issue soon.  Until then, we would appreciate your pr@yers for extra grace, wisdom to make decisions about his care, and a speedy recovery.

For now we are struggling with an active pre-schooler who is suddenly immobile, which creates for some interesting moments and some challenging decisions.

IMG_0927We have begun the quest to find a stroller for a heavy, growing, pre-schooler with on leg.  A new stroller is a must on our shopping list for the States because our cheap umbrella stroller just isn’t cutting it any longer.  Who knew there were so many types of strollers!  And, I am pretty sure they cost more than my first car!  Okay, maybe not that much, but it sure feels like it!  Wisdom.  I truly need stroller wisdom!  We are pr@ying the wheel of our stroller stays on for the next three weeks till we get to the States to buy a new one, and in the mean time Little Man is enjoying many piggyback rides.  He calls himself “Agent W” because he “flies” around on our backs!  Can you believe that Little Monkey can carry him?

We also need wisdom and grace as we interact with our neighbors and friends.  Out on our family walk after dinner we had a woman stop us and with utter shock tell us that our son had lost his leg! We laughed so hard!  We just couldn’t help it.  We have had many folks ask us what happened to his leg, but never had anyone tell us it was missing!  🙂  We know it is gone and we love him the way he is.  We would appreciate your thoughts as we strive to communicate that to those around us.

We will keep you posted on how his leg is healing, our next steps for his care and the funny stories that come up as we go along!  Thanks for keeping us in your thoughts!

 

 

 

With us

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The fall art projects have transitioned into a month worth of Christmas.  Not really sure where the weeks have gone, but I must say I am proud of my little artists who have turned out some fun projects and learned about Christmas as we went.  Evergreen trees, ornaments, Santa and stockings then by the end of the month we got to the heart of Christmas. They took it all in asking great questions.

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I was so blessed by our Christmas classes I didn’t think it could get any better. But it did.

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After talking about our Christmas tree and making cookies I had the idea of bringing a class to our home to experience Christmas at another level. So on a whim, I asked permission to bring my class home with me. I wasn’t really expecting to be allowed so when the permission was granted I was surprised and thrilled.

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My Thursday class got to know me on a whole new level and I them. There is something about a home visit that brings you closer. Each of the kids took photos in front of our Christmas tree, they frosted sugar cookies and exclaimed over their sweetness. I made pizza for them and we played games. But my favorite part was having them sitting around the living room watching Tom and Jerry with my four kids. For a few hours we were one big happy family.

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It was the first time Little Monkey and Little Man had met my students. I wasn’t expecting their surprise over the wheel chairs filling our living room. Little Man asked, “Why do they have legs that don’t work?” His question shouldn’t have caught me off guard. Makes sense in his four year old brain. He is missing a leg so of course he needs help to walk, but all legs should work!

I explained people are all different and some people are born with working legs, some with legs that don’t work and some are born without legs.

I expected a follow-up conversation about special needs, but as always he was many steps ahead of me.

“Mom,” he said, “those boys need to be adopted. You know. You and Dad adopted me and then got me a leg so I could walk. A mom and dad is what they need.”

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The idea of taking my students back to the Children’s home was hard at first. We handed them a small gift at the end of our time. They were thrilled but I felt that it was a cruel consolation prize. The words of my sweet four year old were resounding in my heart.

I love my son for having such confidence in his parents, but as I processed the afternoon I was drawn to the fact that parents wouldn’t meet all the needs of these kiddos just as I can’t meet all of Little Man’s needs.  Although all children need and deserve parents, the answer is in the heart of Christmas.  Immanuel.  G- with us.  He heals.  He provides.  He is.

Once again my sweet kiddos and students teach me, taking me deeper into the heart of Christmas.  As I took the kids back to the Children’s Home I did it with peace knowing Immanuel is with them.

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Fallen off the edge of the earth?

Since I haven’t posted in weeks, I am sure you assume I have fallen off of the edge of the earth.  Nope.  Just traveled around it and we are now heading back again!

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At the beginning of July we flew to the States with the main goal of getting Little Man a new prosthetic leg made.  (Totally need to blog about that process, but we will save that for another time.)   He now is proudly cruising on new toes!  Mission accomplished, but that isn’t the whole story.  The side benefits of needing to come stateside for medical reasons – well they were numerous, to numerous to list, but I might give you a few of the highlights.

  1. Little Monkey got to see the Great Wall for the first time on our way out of the country.  She had mentioned the grievance that the Chinese members of our family had not seen the Great Wall.  A day hiking the wall was our remedy and it was all she had hoped for and then some.

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2. Hang’n with the grandparents was a highlight for all of us.  Being spoiled with favorite foods, riding four-wheelers, tagging along “helping” and chattering non-stop makes for some great summer memories!

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3. The beach.  Nothing else needs to be said.  No photo needed since I was in a bathing suit! 😉

4. Connecting with friends.  I can’t tell you how many times I was in tears this summer over the joy of friendship.  You can’t beat good friends who support you, love you and pray over you.  We are blessed.  Here are two examples – great friends I was in Bible study with 10 years ago!  The sweet fellowship continues.

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5.Simpson Park Camp meeting was a time of peace and renewal for me.  The few days we camped there were filled with such sweet times.  Love that place.  Every furlough should include some time soaking in the goodness of a campmeeting!

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6. I met my new niece!  The one weekend we were around and this sweet, obedient, little one arrived as if on cue! Okay, her mom might not say that, but her Aunt was thrilled by her delay!   Thank you for coming into the world just in time for us to welcome you, precious!

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7. Making it to the Hurley family reunion.  It was so fun to see cousins that I hadn’t seen in years and years and then to watch as our children became friends.  Priceless.

8. Worm guts, blue gill and gnats usually wouldn’t make any highlights list, but enjoying the great outdoors in the country – well I needed that!  I am ready now to go back to our city life after soaking in some country.

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Thinking I should make this a good top ten list, but then who can stop at ten?  It has been a great summer, but we are now ready to return.  Looking forward to a new season.

2.5 million people

Image 5Ever wonder how two country kids can end up living in a city of millions and thrive?

It’s true, Hubby and I both grew up in small towns and at least for myself the thought of living in a city of millions was unimaginable.  But yesterday, we laughed again how living in a large city in this culture at times can be so like living in a small town.

Little Man and I were walking back from the market.  We have learned to ignore the stares as I pull him in the wagon (Thanks to another expat friend who gave us their wagon that had been shipped over from the States.  Gotta love hand-me-downs!)  I was hauling my load up the small hill to the back gate of campus when a middle-aged man stepped in to help.  Rare!  We often get watched but don’t get helped.

I turned to thank him and a conversation began.

It started like most conversations….”So this is your son?”  We chatted about us having four kids; he has one.  I told him how long we lived in China and he told me he grew up in this city.  He asked about Little Man’s leg and the conversation turned a bit more personal.

“Oh, yeah we all know your family.  Your husband is a teacher and we see your children.  We know you live on the 2nd floor in building 5, but we do have questions?

At first this could feel creepy…..but really it speaks to the communal nature of this culture.  It might be a big city, but our little apartment complex filled with neighbors in high risers – they know each other and they want to know and understand me.

“Did your son have an accident which made him lose his leg?  It looks like you love your Chinese children the same as your birth children, but that can’t be true.  Is it?  We watch you come and go….where do you work?  Would you adopt a child from here?  What is this thing you are pulling your son in?  This is my first time seeing a wagon.  You are different!”

I answered his questions as we walked through campus, knowing he would report all my answers to his wife, a teacher along side my husband.  She is sure to tell the other neighbors.  It is like living in a fishbowl.  Maybe if I hadn’t grown up in a small town that would bother me.  Believe it or not, I welcome the curiosity of my neighbors.

As they ask questions our hope is that they see something different about our family and they will be intrigued by who makes us different.

 

Homeschool wrap up

It is 10 a.m. and I am sipping a cup of coffee and munching on a cookie.  Ahhh.  Lazy mornings of summer have arrived and I am so thankful.  I think I need the break from homeschooling as much or more than the kiddos do, but I am glad to report that I am not in a place of desperation.  This has been a great year of homeschooling and I think for the first time I have loved it.  It has only taken me five years to hit a stride – a place where the kids are thriving and so am I.

I have begun planning for next year….ordering curriculum and prepping to school four kiddos (yikes!)  Before I can turn to much attention to our next season of school, I want to recap how far the kiddos have come.

 

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Soccer Dude:  my 6th grade graduate!

Favorite subject:  “If I had to choose something besides reading, I guess it would be math.”  (We are loving Teaching Textbooks around here!  He still reads so much that it is difficult keeping him supplied in books.  Praise God for the Kindle!)

Most improved: His Chinese skills have blown me away.  He can sit down and read entire paragraphs of Chinese characters putting me to shame.  He has his daddy’s aptitude for languages.

Hobbies: training his pet birds, learning computer coding

This summer I would like to: go fishing

 

 

 

 

 

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Roo: my 4th grade graduate!

Favorite subject: art and music

Most improved:  She has fallen in love with reading this year!  What a joy to find her hiding in a fort finishing up the last chapter of a book!  Her favorite book is”From the Mixed-up Files of Mrs. Basil E. Frankweiler”  She mostly likes reading on the Kindle….”because you can read a long chapter book and not even know it.  On the Kindle you don’t see how thick and scary a book might seem.”

What I want to do this summer: learn to play the piano

What do you want to be when you grow up:  a hair dresser just like Nana used to be.  (The girl knows I need help with haircuts!)

 

 

 

 

 

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Little Monkey: my 1st grade graduate!

Favorite subject:  Everything!

Favorite food: rice

Most improved: She went from sounding out letters to reading chapter books!  (I must admit that homeschooling 1st grade is one of my favorites!  It is so rewarding to teach a child to read!)  Her favorite books are Henry and Mudge.

What I want to do this summer:  eat at Chick-fil-A and go to a water park.

What do you want to be when you grow up:  a gymnasts and ballerina who plays the flute.

 

 

 

 

 

 

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Little Man: is graduating to a larger prosthetic leg!

Favorite subject: Disney planes, coloring and reading Cars books

Most improved: He is coloring in the lines, is a verbal dude who now can ride a tricycle without his prosthetic being strapped to the peddle.

What he wants to do this summer: eat ice cream and go for wagon rides.

What do you want to be when you grow up:  “I don’t want to be big.  I will always be your baby.”  (No I didn’t prompt him to say that.  Yes, it made me cry a little and he will now get double dessert!)

 

 

Run of the place

What do the kids of a professor do for fun?  They act like they own campus, of course!

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Look at this Little Man riding his new trike without needing his prosthetic leg strapped to the peddle!

 

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Around the campus and back again!

Little Man Update

IMG_6793One of our biggest concerns moving back to Asia centered around how to care for Little Man and his special needs.  We live in the boonies without the resources available in the States.  Although that is true, we are blessed to have western doctors, nurses and a therapist who live in our city.

Little Man started therapy last week and quickly fell in love with the therapist who is a bubbly American with a wide range of experience.  We were thrilled to hear that her assessment of our little man paralleled what we had been told in the States.  She picked up right where the last therapist left off and gave us exercises to do at home focusing on getting his leg strengthened.

One of the best things for him has been our apartment with hardwood floors.  In Florida he didn’t care to wear his prosthetic at home due to the soft carpet.  Here no prosthetic = sore knees.  He has started putting his leg on in the morning and leaving it on all day long.  The longer he wears it the more his other leg gets used and strengthened.  Bonus.

We have had to adjust his prosthetic since arriving.  This Little Man is intent on not staying little.  He is growing so much and so fast which affects how his prosthetic fits.   For now, minor adjustments have done the trick.  We have researched getting a new one made here in China if there is ever the need, but have found no where.

No where.

It baffles me and makes me realize all over again the grim future most born in this country with limb differences have.  When we pass a beggar on the street, I see what could have been.

Our little guy is walking proof that people born with disabilities are bright, amazing, loving people who add to society.  Our Chinese friends are often shocked when they see all that he can do and how our family loves him.  Even more, I think they are taken by surprise when this little dear wiggles into their hearts as well!  Just this week a neighbor commented to a mutual friend of ours, “You know their son is adopted and disabled, but they carry him and love him like their own.”   There is no better way to share the value of life with those around us then to show them.  We are so thankful to have the opportunity….and desperate.

Desperate to see the other children with limb differences find forever families.

There really is little hope for them if they grow up in the institutions here.  Pr@y with us that Dad will continue to soften hearts and provide families for these amazing children.